My doctor from the Spine Center called yesterday because I had called them last Friday. He hasn’t had a meeting with his colleagues yet as he has been waiting for my records from the pain clinic.
He has explained again why they can’t do a spine fusion. From his experience with patients my age (only 42), combined with how long I have had chronic pain in my lumbar spine (11 years) and that my pain system doesn’t work properly anymore, I will be much worse afterwards. The pain in my back is more or less programmed into my brain now and I am very sensitive to pain. That isn’t something they can fix.
I have heard from 2 doctors now that the risk of me being worse after a fusion is high. So I wouldn’t take the risk now even if I got a second opinion from another back specialist.
He also said that if this last spinal injection doesn’t have an effect then the one he discussed with me won’t have an effect either.
I told him that I haven’t been able to work for 3 years and he was surprised it was only 3 years. I remember when I worked in gothenburg that I had to take a lot of pain killers to try and lessen the pain in my back, but at that time it wasn’t as bad as it is now.
He told me that I might never be able to work again now. That was very hard to hear because my goal has always been to work again, maybe not full time but a few hours a day. To hear from a spine specialist with years of experience that I might never work again was like ripping out the tiny bit of hope I had left.
So yesterday I didn’t feel so wonderful and to top it off I had burning in my spine all day 😦 Nothing helped it, my pills, TENS apparatus, tiger balsam, anti inflammatory gel.. Nothing! I really hope it was a one off I sometimes get and not a sign that the spinal injection hasn’t worked again!
Anyway, he has said that he really wants to try and help me. He will call me next week after he has had a meeting with his colleagues.
So, now I must try and accept how things are and try and find smaller goals.
There is a new drug for chronic back pain being tested at the moment… I emailed the doctor doing it and he doesn’t think I should be in the trial because it will be too hard for me to stop the pills I take now. However it means a new medicine is coming… 🙂